Imagine waking up every day with the energy and mental acuity of a 100yr old man.... when you're 35! If you can imagine that you'll be in the ball park. Then add 10 major symptoms and 20 minor ones listed by the cdc, migraine level headaches, bone aches, fever, all the flu symptoms... that change throughout the day... by the week and month. I even have bad years compared to other years... The name makes it easy to joke about. I assure you, there is nothing funny about it!
@AMC your friend is going to have to change every detail of their life, including diet. Start with a healthy diet and work from there. It took me a decade to figure out how to survive with it.
There is no 'living with it', there is only surviving until secondary issues kill you. 50% are dead in 10yrs, I've lasted 25 because I'm too stubborn to die or quit. Every single person I knew with this illness in 2008 is dead except for 2.
Oh, one more thing, tell your friend to stay away from pharmaceutical medications. They’ll last longer.